PTEN Syndrome Foundation

PTEN Syndrome Foundation

 

 

The PTEN Hamartoma Tumor Syndrome (PHTS) Foundation Announces receipt
of Russel Hill Cancer Foundation Grant Award
Huntsville, AL— 8/22/2018 — THE PTEN HAMARTOMA TUMOR SYNDROME
FOUNDATION RECEIVES GRANT FROM THE RUSSEL HILL CANCER FOUNDATION
FOR $15,000.
The PTEN Hamartoma Tumor Syndrome (PHTS) Foundation is pleased to announce it
received a $15,000 grant from The Russell Hill Cancer Foundation based in Huntsville, AL. These
funds will support the continued development of our patient-powered registry for the PHTS
patient community. The Natural History Study will better characterize PHTS complementing
current clinical data and allowing the patient community the opportunity to participate in
accelerating research forward. Kristin Anthony, PTEN Foundation President and Founder, states
that “This is an incredible step forward giving our patients a voice and inviting them to
participate directly in research.” Anthony also states among other advantages, “The patient-powered
registry will help us identify gaps in care and develop International best practice and
management guidelines.” Emily Davis with the Russel Hill Cancer foundation stated, “We are
excited to work with the PTEN Foundation to help fulfil the organization’s mission.”
PTEN Hamartoma Tumor Syndrome (PHTS) is a thought to be under-diagnosed
hereditary cancer syndrome putting affected patients at high risk of developing multiple types
of cancer including breast, thyroid, kidney, colon, endometrial, and other benign issues. Some
patients are affected by neurocognitive problems including Autism. The PTEN Foundation
representatives believe the patient-powered registry will engage patients through education
and outreach. Anthony remarked “it is critical to keep the patient as the top priority when
working to develop therapies.” “We desire continued improvement of care guidelines and a
treatment for our patients. This effort must involve a collaboration among researchers and the
patient community.” We are thankful for The Russel Hill Cancer Foundation’s support, and also
for the continued support of our Board of Directors and External Scientific Advisory Board.
The Russel Hill Cancer Foundation, founded in May of 2006, by a group of oncologists,
local researchers, and interested citizens met to discuss ways of assisting cancer patients, their
families, and the community. From this group meeting, the Russel Hill Cancer Foundation was
formed. The Foundation is committed to improving the health of the cancer patients by
supporting bold, innovative cancer research, education, and patient assistance. The Foundation
is a non-profit 501(c)3 organization. Grants are awarded through a competitive application and
review process.
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The PTEN Hamartoma Tumor Syndrome (PHTS) Foundation is a 501C3 organization founded in
December 2013 to support the PHTS patient community through programs and patient
assistance, research initiatives, and education.
The Russell Hill Cancer Foundation of Huntsville, Alabama is a 501C3 organization committed to
improving the health of cancer patients by supporting bold, innovative cancer research,
education and patient assistance.
To learn more visit:
www.ptenfoundation.org EIN 46-4279769
www.russelhill.org EIN 20-5015568